SEPTEMBER 2014
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Hi Friends,
Cindy testifies before the FDA Advisory Panel to help get Benlysta approved; offering Hope to lupus patients. (2011)

As you are reading this, I am in Switzerland! I promise pictures and a report on the meeting I am attending in the October newsletter.

The theme for this month's newsletter is HOPE. I think hope is one of my very favorite words. Those four letters keep me going in tough times and warm my heart when I think of the possibilities that dwell within them.

I hope you enjoy this edition of my newsletter!!!

Hugs from a distance,
Cindy
 
P.S. This month's edition of Live Beyond Limits™ is all about hope. My heart aches over the loss of Robin Williams. Sending hope to all affected by chronic illness and depression.
featured article |Big HOPE and Marathons  
Cindy on the finisher's block following her Chicago Marathon run.
      H.O.P.E. = Hold on Pain Ends

Busy Brain woke up this morning thinking about hope. I realize I use the word hope a great deal. Almost every e-mail I write starts out, "I hope you are doing well." And I do hope that the recipient of my note is doing well. I also hope a medical procedure or surgery works, I hope my plane is on time when I travel, and I hope the rain holds off until after outdoor plans are complete. So, what do I really mean by all this hope? It seems to me I almost have two levels of hope: the more casual little hope, like the weather, and the big HOPE that gets me through the challenging days-the belief that somehow tomorrow will be better than today.
 
I am a hopeful person with both language and thoughts sprinkled with hope. I often take my hopeful attitude for granted, until I speak to someone who is missing this little gem in his or her life. I honestly believe that one of the most incredibly depressing things that can happen in life is to be hopeless; to lose a connection to the possibility that things can get better. I can only imagine that experiencing this hopelessness or its equally sad cousin, despair, must feel like being dropped into a big black hole without a flashlight, a friend, or a ladder. That enveloping feeling of not being able to see one ray of light in the darkness must be terrifying. I'm very, very thankful that in all my years of living with chronic illness and living through the depths of infertility, HOPE has remained alive. Even in my middle of the night, most terrified and depressing moments, I was able to reach deep inside and somehow, some way connect to some tiny sliver of belief that sunrise the next day would shed light on possibilities I had yet to think of.

Many, many (healthier) years ago, I completed the Chicago Marathon-all 26.2 miles of it. People have often asked me how I did it. Continue reading >>

"We must accept finite disappointment, but never lose infinite hope."
~ Martin Luther King, Jr.
books |What Cindy's Reading
Honestly, all I've been reading lately are travel books on Switzerland; but thought it might be fun to share books written by friends who are really wonderful human beings. I could go on and on about each of these amazing women, but my space is limited, so I encourage you to visit their websites.

Journal to the Self: Twenty-two Paths to Personal Growth
by Kathleen Adams

This is a great book to help you start journaling, especially if you have never done it before. Kay is an amazingly talented and funny woman! I have used her techniques often, taught workshops based on her work and attended many retreats led by her. Visit my brilliant friend Kay at JournalTherapy.com.


Ink and Honey
by Sibyl Dana Reynolds

The story of the sacred journey of a group of holy women in the thirteenth century, Ink and Honey was inspired by Dana's fascination with medieval women visionaries and ancient feminine wisdom, monastic practices, and historic cathedrals. Dana Reynolds is an incredibly spiritual and creative artist whose friendship I have treasured for many years. SacredLifeArts.com.


A Life Interrupted: Living with Brain Injury by Louise Mathewson

I had the pleasure of spending a week with Louise at a retreat led by Kay Adams and Dana Reynolds mentioned above. Louise is an incredible woman whose life was forever changed in the moment of impact of a car accident. Traumatic brain injury presented many challenges, but to quote Louise, "Ultimately brought me to a place of renewed hope, gratitude and grace." Her collection of poetry speaks to the resiliency of the human spirit. Visit my friend and her unsinkable spirit at: LouiseMathewson.com

encouragement
Read Cindy's latest blog entries Visit our blog
08-18-2014 

One day shortly after she turned sixteen, my daughter walked me out to her beat up old Volvo station wagon because she was concerned about a light that was flashing on the dashboard. I crawled in, cranked the engine and burst out laughing. [cont.]...»

 

08-11-2014

I'm not a big fan of the word chronic. Okay, maybe the word itself isn't so bad, but the concept just doesn't bring happy thoughts to mind. I've never heard the word applied to anything good. Have you ever heard someone referred to as chronically happy, a chronic optimist or chronically thoughtful? [conti.]...»

 

08-04-2014 

Have you ever said to yourself, "Don't think about that"? I don't know about you, but those four words (maybe the contraction should count as one and a half words?) do not stop Busy Brain from having an absolute field day [cont.]...»

Where's Cindy? |Upcoming Appearances & Events
Cindy Coney

Lupus Remission Task Force Meeting
August 28, 2014 in Zurich, Switzerland

Lupus Foundation of America: Philadelphia Tri State Summit
October 18, 2014 in Philadelphia, PA
Keynote Address More information

American College of Rheumatology/Association of Rheumatology Health Professionals
November 16, 2014 in Boston, MA
Keynote Address More information

Scleroderma Foundation - South Carolina Chapter
January 31, 2015 in Charleston, SC

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* I would love to speak to your group. Simply contact me at: cindy@cindyconey.com and we'll work out the details!

ABOUT CINDY CONEY Nationally recognized keynote speaker and resiliency educator Cindy Coney has assisted thousands in moving beyond "coping" with limitations to recapturing joy, balance and freedom through her speeches and pioneering educational training for patients and healthcare professionals. Diagnosed with lupus in 1980, Cindy has traveled the globe to share her story of thriving after a chronic diagnosis. Read more.
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