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Patient Support Organizations

Organizations Supporting Patients and Families with Chronic Illness

American Autoimmune Related Diseases Association
National organization that works to alleviate suffering and the socioeconomic impact of autoimmunity. Dedicated to the eradication of autoimmune diseases through fostering and facilitating collaboration in the areas of education, research, and patient services.

American Cancer Society
Nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.

American Chronic Pain Association (ACPA)
Provides self-help coping skills and peer support to people with chronic pain. Sponsors local support groups throughout the U.S. and provides assistance in starting and maintaining support groups.

American Diabetes Association
Non-profit health organization providing diabetes research, advocacy services, and information, including information on the complications of diabetes, such as diabetic neuropathy.

American Heart Association
National voluntary health agency whose mission is to reduce disability and death from cardiovascular diseases and stroke.

Arthritis Foundation
Volunteer-driven organization that works to improve lives through leadership in the prevention, control, and cure of arthritis and related diseases. Offers free brochures on various types of arthritis, treatment options, and management of daily activities when affected.

Epilepsy Foundation
National charitable organization dedicated to the welfare of people with epilepsy. Works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure. Offers a Legal Defense Program through a fund.

National Fibromyalgia Association
Founded in 1997, the National Fibromyalgia Association (NFA) is the largest nonprofit [501(c)3] organization working to support people with fibromyalgia and other chronic pain illnesses.

Huntington’s Disease Society of America
Dedicated to finding a cure for Huntington’s Disease while providing support and services for those with HD and their families.

Lupus Foundation of America
Devoted to solving the mystery of lupus, one of the world’s cruelest, most unpredictable, and devastating diseases, while giving caring support to those who suffer from its brutal impact.

Lyme Disease Foundation
Nonprofit medical healthcare agency dedicated to finding solutions to tick-borne disorders.

 

Multiple Sclerosis Foundation
Dedicated to helping people with MS, the Multiple Sclerosis Foundation offers a wide array of free services including: national toll-free support, educational programs, homecare services, support groups, assistive technology programs, publications, a comprehensive website, and more programs to improve the quality of life for those affected by MS.

National Fibromyalgia Association
Non-profit organization whose mission is to develop and execute programs dedicated to improving the quality of life for people with fibromyalgia by increasing the awareness of the public, media, government and medical communities.

National Multiple Sclerosis Society
Funds research, helps families stay together, provides accurate and up-to-date information, helps with employment issues, offers free counseling, runs self-help groups, advocates for people with disabilities, and provides referrals to medical professionals.

Rheumatoid Arthritis Support Network
The Rheumatoid Arthritis Support Network (RASN) is dedicated to providing up-to-date information and resources for rheumatoid arthritis patients and individuals who are experiencing arthritis-like symptoms.

Sarcoidosis Research Institute
Non-profit organization dedicated to increasing knowledge about sarcoidosis by disseminating information to professionals, assisting with investigation into the cause and treatment of the disease, and by providing support for individuals afflicted with sarcoidosis.

Scleroderma Foundation
The Scleroderma Foundation is the national organization for people with scleroderma and their families and friends.

Sjogren’s Syndrome Foundation
National nonprofit organization of patients, caregivers, and healthcare providers dedicated to support, education, and the stimulation of research toward better treatments and a cure for Sjogren’s syndrome.

Spina Bifida Association
Non-profit association that provides information and referrals through a clearinghouse and toll-free number. Promotes research into the causes, treatment and prevention of Spina Bifida; conducts public awareness campaigns; and encourages socialization and training for people with Spina Bifida.