Cindy gets a hug from one of the participants following her speech
Cindy gets a hug from one of the participants following her speech.

Hi Friends,

I don't know about you, but for me this summer is flying by at lightning speed. Where did June and July go anyway???

I hope everyone has been taking good care of themselves. This summer heat can really zap our energy and, in my case at least, leave me scrambling for air conditioning!

My most exciting news is I'm going to Zurich! I've been asked to sit on an international panel with doctors and researchers from around the world to offer a "patient's perspective" in defining remission in lupus. More about this in upcoming newsletters.

Big hugs to each of you,
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featured article |Respect Not Fear 
"Be like lightning which has the power to animate or destroy life.  It's up to you which side you want to take."  ~ Muhammad Imran Hasan
Late summer afternoons, the sky turns from bright blue to dark purple as the thunderstorms roll in off the Gulf of Mexico. You can hear the rumble in the distance as the storms move in. Then, out of the blue, bolts of lightning begin to zap from the clouds to the ground. The air sizzles with electricity, the power flickers and dogs all over town either begin barking furiously (like mine) or run for cover. Welcome to Tampa, Florida, the lightning capital of the world (or the nation, there is a bit of discrepancy around this title). Regardless, I can tell you this-we get a lot of lightning!

And I can also tell you that those of us who are native Floridians do not typically live in constant fear of this lightning, or hurricanes either for that matter. No, these weather related events are a normal and expected part of our lives. This is not always the case for the tourists who flock to our state. For many I've met, this lightning is terrifying. I think it is all a matter of what you are used to. While I cope easily with lightning and hurricanes, I did find sitting in my nephew's basement one evening in Arkansas with the tornado sirens blaring a bit unsettling. Out of curiosity, I checked the internet (so take this with a grain of salt) and found that the odds of getting struck by lightning are 576,000 to 1. If correct, you can see that the odds are in our favor to not get struck. From the same online source, I also  noticed that the chance of dying from a shark attack is 300,000,000 to 1, so unless you are that 1, swimming in the Gulf looks pretty safe too!

The point of all my Busy Brain thoughts about lightning revolves around stress and fear. Living in constant fear can be stressful. For those of us living with chronic illness, that fear and its accompanying stress can exacerbate the disease.  Continue reading >>

"When you come out of the storm, you won't be the same person who walked in. That's what this storm's all about." ~ Haruki Murakami,Kafka on the Shore
books |What Cindy's Reading
As I write this today, I'm actually resting in bed (which is something I don't do often) because I had shots in my back again to stop the pesky pain that seems to like nagging me on my morning walks. Thought it might be fun to share with you what I look over and see on my nightstand. Each is also the type of meaningful little book that I'd love to write someday!

God Never Blinks: 50 Lessons for Life's Little Detours by Regina Brett

A friend recommended this book and I love it (hence the reason it stays on the nightstand!). It is a true story of resiliency from a woman who has struggled through many challenges in life including cancer, alcoholism and being a single mother. With a chapter title like: No one else is in charge of your happiness. You are the CEO of your joy, how could I not love this book?!

Help, Thanks, Wow: The Three Essential Prayers by Anne Lamott

I enjoy Anne Lamott's books. This tiny little book is my favorite. I have underlined lots of lines in the book, like: Gratitude begins in our hearts and then dovetails into behavior. It almost always makes you willing to be of service, which is where joy resides. Nice, huh?

The Etiquette of Illness: What to Say When You Can't Find the Words
by Susan Halpern

I can't believe I have not included this book on my book list before. If you care about someone struggling with illness (don't we all) this is the PERFECT book. When speaking to audiences with spouses and loved ones present, someone always walks up after the speech and asks how they can better support their loved one. I think this little book might just supply some of those answers.

Read Cindy's latest blog entries

Okay, I'll admit it. Occasionally my Happy goes into hiding and seems to be taking my spunk-and sometimes my sense of humor-with her. And darn, I miss them both! On these hiding days »



When I was a little girl, I remember my mother getting dressed up and taking me to a big department store in downtown Tampa. We would get in the elevator and the kind »


The person introducing me mentioned among other things that I was diagnosed with lupus over thirty years ago. At the conclusion of the introduction, »



I have a sleep number. Not a sleep number bed, but a personal sleep number. It is the required number of hours necessary for me to wake up in the morning feeling human »

Where's Cindy? |Upcoming Appearances & Events
Cindy Coney

Ovacome Gynecologic Cancer Alliance

August 19, 2014 (6:00 pm) at St. Joseph's Hospita in Tampa, FL
Support Group Meeting Speech More information

Lupus Remission Task Force Meeting

August 28, 2014 in Zurich, Switzerland

Lupus Foundation of America: Philadelphia Tri State Summit
October 18, 2014 in Philadelphia, PA
Keynote Address More information

American College of Rheumatology/Association of Rheumatology Health Professionals
November 16, 2014 in Boston, MA
Keynote Address More information
* I would love to speak to your group. Simply contact me at: and we'll work out the details!
ABOUT CINDY CONEY Nationally recognized keynote speaker and resiliency educator Cindy Coney has assisted thousands in moving beyond "coping" with limitations to recapturing joy, balance and freedom through her speeches and pioneering educational training for patients and healthcare professionals. Diagnosed with lupus in 1980, Cindy has traveled the globe to share her story of thriving after a chronic diagnosis. Read more.
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